Kawasaki disease: after three hospitals, lots of perfusions,one lumbar ponction and different treatments we finally know the reason why our oldest girl was struggling with high fever and low blood pressure the last days. Her condition was getting worse so the doctors finally thought about Kawasaki disease (at first they thought it was meningitis,that’s why the lumbar ponction), started the right treatment (intravenous inmunoglobulin and aspirin)
Her condition improved so we could came back home yesterday. She’s slowly recovering from everything and we’ll have different appointments to check her heart again,but I wanted to share these templates (swipe for English/french and Spanish) to share in case that helps someone else. I heard about Kawasaki disease but had no idea how impressive symptoms might be and about this coronary risk,so I guess that raising awareness is never a bad idea?
That painting was on one of the rooms we had,when we arrived at the emergency room of Toulouse (by helicopter,no parents allowed ?) Thanks to all those who sent DMS to check and thought about us,if you know me a bit you probably know that I don’t usually need insta breaks,here’s my happy place and I really enjoy this space and I will probably start sharing again my usual content because that’s how I reset and think about happy things?
Some info:
“Kawasaki disease (KD), also known as Kawasaki syndrome, is a severe illness characterized by inflammation of blood vessels throughout the body that primarily affects young children and infants. Kawasaki disease is the leading cause of acquired heart disease in children. Although about 80 percent of patients are under five years of age, older children and teenagers can also get KD, but this is uncommon. KD is not contagious.
It is estimated that more than 4,200 children are diagnosed with Kawasaki Disease in the U.S. each year. The cause of KD is unknown, although an agent, like a virus,is suspected.There is no specific test for KD; doctors make a clinical diagnosis based on a collection of symptoms and physical findings” www.kdfoundation.org
Thanks to all the health professionals that helped us last week ??
